The, sometimes quite loud, opposition to anything I write about being a contented wheelchair user, or my pride in being a member of the disability community, has had me thinking a bit about how I came to this world view. I think three things are at play here.
1) I have spent a lifetime being different, one way or another. I've always been fat. From the moment I became aware of gender/sexuality/love I knew that I was different from the norm. The journeys I've had on either of those roads led me to a point where I believe a happy life is a life of self acceptance, even in the face of opposition. I spent time, a lot of time, in self loathing. I spent a lot of time considering suicide. I spent a lot of time praying. But during those dark times, life and purpose and love kept shining through the cracks. Finally I realised that it was I who drew the curtains and therefore it was me who could throw them back. And I did. By the time disability came along, it didn't seem to me to be such a big deal. Another difference. I wrote about someone once THERE CAN BE TOO MUCH DIVERSITY IN JUST ONE PERSON, and I suppose that can now be said of me. I'm cool with what comes. I'm cool with who I'm becoming.
2) I worked in a school, decades ago, as a classroom assistant, supporting teens with physical disabilities. They had a segregated home room and went to regular classes with regular students. The irregularity of regular students is never much mentioned but, one day, should be. Anyways, these were all kids who were borne with their various disabilities. They were amazing and very cool kids - I don't mean in the yucky kind of inspirational way - I mean in the incredible way that they handled difference and disability and the discrimination that comes with it all. One student in particular who fumed at having to enter a building by going on the ramp used for the garbage trolleys ... fuming at fumes, she called it, taught me so much about blatant discrimination that was completely invisible to others. I had thought that we were lucky that they had a ramp, she railed against entering the back door while all others went in the front. That year I spent doing that job, now that I look back on it, seemed to be prep school for the life I live now. Their wheelchair may have defined, to an extent, their identities but it didn't confine their aspirations. Later I would learn that the world view of those born with disabilities and those who acquire them later in life can be wildly at conflict - but that's a subject for others with a deeper human vocabulary than I have to write about.
3) I've never written about the day I lost the ability to walk (in front of three hundred people attending the lecture that day) and the surgery that cemented my status as a disabled person. I'm not ready to do that now. It's a story that only a few know. Maybe one day I will be moved to write it all down. But the moment that is pertinent here happened just before surgery. I was asked to sign a paper acknowledging the fact that I was told that the likelihood of success was low and that I may well die during the operation. I had a choice, surgery and chance of living, certainty of dieing in a day or two. I choose to take the chance. I woke up in recovery. Got some pretty spectacularly bad news. Got some even more spectacularly good news. I was going to live. They had a pretty good idea of why this happened to me and figured that they could prevent it from happening again. The ability to walk, which I'd lost just days before the surgery, wouldn't come back. But, life would. I don't know but it seemed a step up. Those who say 'I'd rather be dead than disabled.' Well, I had that choice and, personally, I think rolling around in a wheelchair is better than spinning in a grave screaming 'WHAT WAS I THINKING!!!!'
So, at the intersection of those three events/things I found a peace with who I am, where I am and how I move. I don't wish to spend time in wishing for something else, when this is the something I wished for waiting for surgery, another day, another breath, another opportunity to get it right. I am living the wish. And, I have no desire to waste time on wishing for what won't come instead of enjoying what does come. Further, I believe that using my energy towards making social change is kind of the responsibility that comes with a second chance.
But maybe that's just me.