tag:blogger.com,1999:blog-35743239.post6474157833727107599..comments2024-03-29T03:43:45.977-04:00Comments on Of Battered Aspect: Rx for The Dr.Dave Hingsburgerhttp://www.blogger.com/profile/11918601687946534172noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-35743239.post-31569819739946343482011-08-26T09:47:53.281-04:002011-08-26T09:47:53.281-04:00Dave
I, too, like that Hugh was part of his own s...Dave<br /><br />I, too, like that Hugh was part of his own self advocacy effort, with others acting as allies following his agenda and strategies rather than imposing their will on his own.Andrea S.http://gdrl.orgnoreply@blogger.comtag:blogger.com,1999:blog-35743239.post-74246103589877601072011-08-25T13:13:17.915-04:002011-08-25T13:13:17.915-04:00This is a great lesson in listening and forcing ot...This is a great lesson in listening and forcing others to listen by not accepting the wrong answer. I agree with you, Dave, that the most important part was that Hugh was the driving force behind everyone's actions. <br /><br />One of the limitations I was always told my son with Down syndrome would have is that he wouldn't be able to take something he learned in one situation and transfer it to another. That, of course, was another one of those myths. <br /><br />But, this story made me wonder if the medical team learned this lesson well enough to be able to transfer their new knowledge that someone with an intellectual disability can recover from an operation successfully to the next person with an intellectual disability. Or will they, as so often is done, just see this as an anomaly and continue on with their discriminatory "policies"?<br /><br />Let's hope that Hugh and his supporters truly changed some hearts and minds.Tamarahttps://www.blogger.com/profile/04624151975591059655noreply@blogger.comtag:blogger.com,1999:blog-35743239.post-77876827210591580532011-08-25T10:07:04.636-04:002011-08-25T10:07:04.636-04:00I liked many things about this story, but one of t...I liked many things about this story, but one of the most important elements for me is that they advocated at his bidding and that at the crucial moment in meeting with the surgeon he was there advocating for himself. Too often we speak for and we speak without ... here people acted upon his instructions, carrying out his will and ultimately it was his voice that was heard. This to me is what we need to do, teach people to speak for themselves and to lead the 'advocacy team' if there is one. In this story I get the sense that Hugh was at the center of all activity - not peripheral to it as so often happens.Dave Hingsburgerhttps://www.blogger.com/profile/11918601687946534172noreply@blogger.comtag:blogger.com,1999:blog-35743239.post-50931542953975393982011-08-25T09:56:37.197-04:002011-08-25T09:56:37.197-04:00My 16 year old daughter's dentist refused to d...My 16 year old daughter's dentist refused to discuss braces for her because, in his words, "why does it matter that her teeth are crooked?"<br /><br />My daughter has deafblindness, a feisty spirit and three brain tumors. She also has crooked teeth that she wants straightened.<br /><br />Needless to say, we changed dentists.Ashley's Momhttps://www.blogger.com/profile/05621835327282616218noreply@blogger.comtag:blogger.com,1999:blog-35743239.post-44898614714204685212011-08-25T08:36:06.069-04:002011-08-25T08:36:06.069-04:00It's disgusting that they had to push so hard ...It's disgusting that they had to push so hard just to get his humanity and his right to basic medical care and his right to LIFE acknowledged. I'm glad people were there who could support him in his quest to be free of pain.Andrea S.http://gdrl.orgnoreply@blogger.comtag:blogger.com,1999:blog-35743239.post-87156615714874444692011-08-25T07:07:56.016-04:002011-08-25T07:07:56.016-04:00Wow, having a "sit in" and demanding act...Wow, having a "sit in" and demanding action is exactly the kind of thing that we should all be doing in so many situations. I think it's great that these staff and Hugh took a 60's attitude to the problem. These days we are so likely to just say "oh well" and let prejudice go like there's nothing we can do about it. Good for you guys. "Peace Out"! I guess I'm showing my age here aren't I?Yvonnenoreply@blogger.com